Mission & Values

The Evanosky Foundation supports pediatric leukodystrophy research, universal newborn screening, and children and families affected by a leukodystrophy, lysosomal storage disorders, or other disabling pediatric conditions. We are a dynamic organization committed to seeing meaningful change and improvement in each of these areas.

Core Values

• We believe in each child’s right to live his life to the fullest and achieve his full potential.
• We are compelled by our faith to help our fellow man during times of extreme need.
• We vow to be faithful stewards of all monies raised, and promise to respect individual donors’ requests pertaining to use of their funds.
• We commit to being partners in everything we do.
• We promise to be responsive to needs and requests, and to see each of our efforts through to fruition.
• We will be proactive, seeking out those who need help.
• We pledge our lifelong commitment to this endeavor.